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Wednesday, November 20, 2024

A Soft Answer...


Yesterday was a really busy and abnormal day.  Monday night I could see my week getting increasingly busy and realized I was going to have to fit my grocery shopping in earlier than normal.  So after dropping the kids off at school Tuesday morning I ran to Fred Meyer and then to Safeway. 

[As a little side story that has nothing to do with the main point of this post, I got a free turkey from Fred Meyer for the second week in a row.  We have 2 people in our family who can't stand turkey so we generally bake a ham and my sister does a turkey breast in her Instapot and brings it over.  I take the free frozen turkeys anyway and donate them to people in my circle who could use them.  Last week I gave the turkey to the family of one of our daughter's friends who, among other things, is struggling with cancer treatments and other health struggles and said they could use a free turkey.  Yesterday, after finishing my grocery shopping, I went to my favorite thrift store to offer a free turkey to my favorite employee there and she was so excited and grateful!  I have never seen someone so thrilled over a turkey before!  It made my morning to see her so happy!]

Back to the rest of my story:

I got home with enough time to put the groceries away and do my Bible reading before my husband got home (from Newark, NJ) and then I went to my son's school to volunteer over his lunch break.

When my husband got home he started a load of laundry and then went to the gas station to get fuel for our generator.  Then he did a bunch of yard cleanup ahead of a big wind storm (the weather people called it a "bomb cyclone") heading our way.

I got home and fixed us some lunch.  We had a roofing contractor pull up to give us an estimate on replacing our roof (it is the original roof and over 20 years old and it developed a minor leak last week) just as I was leaving to pick the kids up from school. 

The roofing guy thoroughly inspected our roof and was at our home for several hours because after his inspection,  he sat in his car and worked up a quote for us and then came inside to discuss it.  By the time he left it was after 5pm and our lights were really blinking.   My Mom had lost power an hour or two before and we were anticipating our own power outage (it DID end up going out at about 8:30pm and is still currently out as I write this).

I had a killer headache so took some Excederin and we decided to go get dinner and bring it home - that means I got everyone's orders and my daughter (thankfully) drove me to the restaurant (while the boys stayed home) to get the food and then she drove us home.  

One of the blessings of having MS on a night when EVERYONE is losing power or anticipating losing power so restaurants are super busy is that I qualify for and have a disabled parking permit.  It has been such a relief to be able to find close-in parking, especially on days when I am fatigued,  have a pronounced foot drop, have a headache and feel heavy - like I'm walking through a pool full of play doh.  Last night my daughter pulled in to the disabled spot in front of the restaurant while I pulled out my parking hang-tag and put it on the rear view mirror. 

Right away we noticed a truck flashing its brights right behind us as we parked.  I thought initially the driver had bumped his brights on accident but he just sat there with his lights on behind us and when we got out of the car, he could only see my able-bodied 15 year-old daughter and yelled out his window "Are you disabled?!  If not, you need to move!"  So I walked around behind the car over to his window and kindly asked if he could see my hanging disabled parking tag.  He gave me a thumbs up but I walked up to his window and explained that I have MS and he was very understanding.   He has a bad back (with a rod in it) and it hurts him to get in and out of his truck.  He was so nice when I talked to him!  I put my hand on his and offered to move but he wouldn't let me and as we were talking an even closer spot to the door opened up and he was able to park there.  After ordering and paying for our dinner I noticed he was sitting and recovering for a bit before he stood up to get in line so I offered to stand in line for him while he sat down.  He wouldn't let me but we left on great terms and we wished eachother a happy Thanksgiving and a Merry Christmas.   It was such a bright spot in my day and my daughter felt love and compassion for him as well.

I learned a LOT through that interaction.   My daughter saw a very clear, real-world example of how a soft answer really CAN turn away wrath.  But as I thought about it later, I realized another important lesson for myself.   I learned was that I should not take that disabled parking permit for granted as I often do.  I may be disabled but there are people in a LOT worse shape than me who need those spots more than I do.  I was being self-centered in my thinking and not considering the needs of others.  I need to make sure that I only park in those spots when I REALLY need to - not just out of convenience.  Exercise is good for me and I am not in any pain.  If I am having a good MS day, I will choose a different parking spot from now on and leave the disabled spots for someone who really needs it.  




Friday, November 15, 2024

Love... even when I don't want to

Last year our kids both attended a private Christian school and had been at that school for 5 years straight.  We had pulled them out of our local public school because of the new laws in our state requiring public schools to incorporate extremely immoral teaching into their curriculum.  In addition,  our kids were not allowed to exercise their rights to free speech and were disciplined for sharing their faith with others.   Our daughter was un-phased and in full confidence that her parents supported her actions,  continued sharing her faith with her friends out of earshot of her teachers.   Our son was in 1st grade and he had a teacher whose discipline style included a lot of yelling.   Our son has, among other things, a sensory processing disorder and he has extremely negative reactions to angry yelling so he did all he could to avoid being yelled at and he hid his faith.  Our most important priority as parents is to nurture and protect spiritual growth in our children.   To create an environment where our children are free to develop a personal relationship with Jesus Christ and grow in confidence of their eternal security and in their desire to share that confidence with others.  We want our children to be testimonies for Christ - not terrified by the world.  This is a long way of saying that we pulled our kids out of the public school system to save them from being lost to the world - especially our son but our daughter was feeling very isolated and couldn't find friends who had common interests.  She was feeling like she needed to be in a place where the kids listened to the same music as her and where she could freely express herself as a Christian without being sent to the principal's office every other day. 

This is going to be a LONG post - buckle up!

Our children thrived at their new Christian school.  It was such a relief to us that their hearts and minds were being protected and loved.

We knew that our son had a sensory processing disorder and we had long suspected there were other issues that he struggled with but we had not been able to find anyone willing to evaluate him and his doctor and all his teachers said he was in the normal range and would outgrow some of his more immature behaviors.   But then he entered middle school.   He was not keeping up with the maturity of his peers.  He lacked focus in class and he fell behind.   His teachers met with me and asked me to pursue getting an appointment for a neuro-psychological evaluation so they could determine what he was capable of and how they could help him.  I tried to get one scheduled right away but the soonest I could get him in was a year out.  Then, they brought in the middle school principal who suggested that we have our son evaluated through the public school system to see if he met special needs requirements.   She said they had other students currently at the school who had gone through the same process and it had really helped the teachers understand how best to help them in the classroom.   They said that because we are taxpayers, the district was required to provide a swift evaluation at no cost to us and we would be under no obligation to enroll our son in the public school system. 

So, we filled out all the paperwork through our local public school district and the process was completed in about 3 months.  Our son qualified for special needs but he only needed some minor supports to help him which was encouraging.  After the report was shared with the school, we were told they wouldn't be able to provide the level of support our son needed.   They didn't agree with the report and instead relied on an evaluation they had conducted after one day of observation on their own, without our knowledge, and essentially said they wouldn't be able to successfully help him get through school to graduation.  We were in shock.   This had not been something we had anticipated nor had the school given us any indication this might be a possibility.   It was mid-May - the end of the school year was a few weeks away and we were callously told our son was no longer welcome at this school.   Over the next couple of weeks I advocated strongly for our son to stay at the school.  Even his counselor (a lovely and talented Christian counselor) said that moving him to a different school would be very disruptive and could have a negative impact on him.  

In the end, we were forced to scramble and get our son enrolled into our local public middle school where he is getting the very minor support he needs and is doing well - at least academically and even socially. 

But as I said earlier, the spiritual development of our children is our first priority.   At the beginning of the year I started reading a devotional to our kids every morning before school in addition to the 3 devotionals my son likes me to read with him at night (I started reading devotionals to our son after I stopped reading bedtime stories - I did this with our daughter too until she started doing it on her own a couple of years ago).  Youth group is an even bigger priority now as well and I am volunteering at our son's school lunch once a week.

Our schedule has been upended.  Our son's school is near our home and it starts 5 minutes before our daughter's school starts (she is still at the Christian school and is thriving there) but her school is 15-20 minutes away from our house and our son's school doesn't have any place indoors for him to hang out until 20 minutes before the start of class.  So, we all have to get up and leave early.  Our daughter gets dropped off a half an hour before her school day starts and then I drive our son back to his school,  getting him there about 10 minutes before class time.  We have to be this early to allow for potentially bad traffic which has happened a few times and we have barely made it on time to his school but thankfully,  we have not been late yet!  The afternoon is equally crazy.  Our son's school gets out 10 minutes earlier than our daughter's school so I pick him up first,  drop him off at home and then go get our daughter- she gets picked up about 20 minutes after school gets out.  So our daughter spends almost an additional hour at school because our son has to go to a different school.   

For more background information on the point of this post, our son has since had his neuropsychological exam and the results and official diagnoses and recommendations are in!  Finally!  He has moderate ADHD but it was determined that he can, in fact, focus even on things that don't interest him for short periods of time and even for longer periods if properly motivated (motivational recommendations were included in the report and they are simple).  He is very mildly affected by Autism Spectrum Disorder mainly in the areas of social/emotional development (there's a maturity delay), self advocacy and executive function and suggestions for helping him overcome his deficits were also included and, again, simple to employ.  He also has an Anxiety Disorder that makes him more anxious than his peers and his counselor is working with him on techniques he can use to calm his anxiety.  Finally, the report showed that he is exceedingly smart- the IQ portion of his tests reveal that he is in the 70th to 85th percentile with regard to intellectual and cognitive capabilities in almost every IQ category and there wasn't a single area he was below average - his problem solving capabilities were in the 99th percentile.  So, while our son has some challenges,  he is more than capable of finding ways to overcome those challenges with support.  And the biggest thing he has going for him is his strong faith and high sense of self-esteem.   His counselor is impressed by his scriptural knowledge and by how kind and polite he is.  God is protecting him and our son is secure in that knowledge. 

Now, back to 1 Corinthians 13 which was in my reading this morning.   The team of teachers and the middle school principal gave up on our son.  They didn't love him enough to try any minor alternative methods of teaching to help him.  They let him flounder his last quarter of 6th grade because they had already decided he wasn't going to be able to continue at the school.  We could have forced the issue.   They said they were willing to try if we invested in a para-educator to sit with him in half of his classes and paid an extra fee to replace one of his electives with a student services class that was designed to assist him with executive function challenges and help him get other classwork done in a smaller class setting with more one-on-one support.   But the cost would have more than doubled the cost of tuition and the school was unwilling to allow him to take English or Math at his grade level - he would have been behind and unlikely to catch up to his peers meaning ultimately that he would not earn a diploma.  Much prayer went in to making the final decision to withdraw our son from the Christian school.  They were not looking  at what was in the best interests of our son.  It was heartbreaking on a number of levels. But in the end we decided it would not benefit our son to continue his education at a school that not only didn't want him there but were unwilling to truly help him successfully graduate from middle school and ultimately, high school.  I think you can probably see my struggle with applying these verses about love to the teachers and administrators at this school and I am especially convicted by verse 5 of 1 Corinthians 13!

Realizing this school was capable of, but unwilling to help our son is hard.  

Knowing that our son was going to a public school environment where he was the new kid and there were so many unknowns (and he was anxious about it) was hard.  

Understanding that our daughter would still attend the school that rejected her brother was hard (for her too).  

Seeing the middle school principal directing traffic as we leave the school in the afternoons is still hard. 

Taking our son to watch our daughter sing at school choir concerts where he will see his former classmates and teachers will be hard!  

Forgiveness and true, un-resentful love is HARD

I have posted previously about some of the blessings we experienced as our son started at his new school.  And while it's hard for me to think positively about the middle school team that treated him and our family so poorly, I have to remember that his elementary school experience at this same school and the teachers there were so loving and encouraging and they were instrumental in providing our son with the environment and Christian education that helped him form his strong faith and confidence in what he believes.   And some of those same teachers were the teachers who helped our daughter successfully navigate her first year of middle school and the principal was the same principal who ultimately helped us confront a very serious issue with another student in our daughter's grade.

Maybe you have struggled with loving someone who has hurt you and you can relate to me in this regard.   No one at the school has asked for my forgiveness.   They truly believe they acted appropriately.   And I have to choose to forgive them every time I think about it which is at least twice every day as I drive to and from the school to drop off and pick up our daughter.  And every time I interact with the teachers at my son's school or help him get his assignments organized, I am reminded and have to choose forgiveness.   

I have an emotional pit in my stomach that hurts so much for our son because I know he really wants to go back to the Christian school environment where he feels safe and he understands that he can't. 

But I HAVE to set aside my personal feelings of hurt and not let bitterness settle in.  It will eat me from the inside out and I am NOT a person who has historically held grudges.  Nor would the Lord approve if I did.  As hard as it is not to keep corresponding with the school administrators (suggesting that, for the sake of their Christian testimony, they not treat other families the way they treated ours), I have to let my own desires to effect positive change in the school go and let God work in the hearts and minds of the administration at the school as He wills.   I need to 1 Corinthians 13 love the school administration and trust God with the rest.

Pray for me because this kind of TRUE love is hard and a moment-by-moment choice.

Tuesday, November 12, 2024

Bubble of Protection

I pray every day for a "bubble" or invisible forcefield of protection around my husband, my children, myself, our home, the kids' teachers and schools, our church, our neighborhood, and around anything or anyone else that comes to mind as I am praying.   I visualize a giant invisible bubble of protection with guardian angels posted all around,  keeping us safe - protecting us not only physically but mentally,  spiritually and emotionally as well.  I pray it out loud with my family and quietly to myself.   I pray constantly. 

I know the Lord hears my prayers and that we are covered and protected.  But that doesn't mean I bear no responsibility for avoiding situations that could harm me.  And it doesn't mean I won't ever get hurt.

In January,  my husband was out of town and I was racing (I am not fast but it felt like I was racing 🙃) around the house trying to get a few chores done before getting the kids to school.   I was almost done.  The kids were finishing up breakfast and I was taking the garbage I had just rounded up out through the garage to the big garbage bin outside.   Coming back in to the garage, in my hurry, I didn't lift my leg high enough (as often happens to me because if the faulty wiring in my brain that can't quickly get signals down to my legs) and my toe caught the threshold strip of the door.  I tripped and my weak legs and slow brain couldn't stop me from falling - HARD!  I hit my head on the corner of a portable workbench and slammed my left elbow into the concrete floor.  OUCH!  I yelled and my daughter came running to help me.  I was bleeding and I had an immediate goose egg on the side of my head.  But I didn't lose consciousness and I didn't feel anything was broken or seriously damaged so, I got up with help from my daughter, cleaned up the blood and drove my kids to school. 

I called and messaged with my doctors after I got home  and, thankfully,  I didn't need to go to the ER because my husband was going to be home later that day and would be available to watch for signs of a concussion or a brain bleed.

It was a painful reminder that I need to be extra careful when I feel I'm in a hurry.   But even in that fall, I was protected from serious harm.  I hit just right so as to avoid the corner of that work bench hitting me in the left temple or left eye.  I could have died from a fall like that or I could have lost an eye or any number of things could have happened.   I didn't break my arm although it took a really long time to heal.  I looked like someone had beaten me with  a baseball bat and my jaw was badly bruised so I was on a soft food diet for awhile since I could hardly open my mouth because of the pain. 

Even in that though I couldn't feel sorry for myself.  I kept thinking of Jesus being beaten to the point He was unrecognizable and then crucified as an innocent man - yet fully God - paying the death penalty for MY sin!  And my thoughts went to soldiers who have been injured in battle, protecting us and sacrificing, risking life and limb for our freedoms.  I thought about the apostles,  stoned, beaten, imprisoned for sharing their faith.  And how could I whine about a little bump on my head and a sore elbow?!

I am convinced God directed an angel or two to protect me that day.  And no one will be able to convince me otherwise.   Another thing I learned through that experience is that I have a very hard head! 😉

More evidence in my life that prayer works and God protects us!

Monday, November 11, 2024

We are ALL Disabled - some just don't realize it.

My favorite verse in the Bible has been Micah 7:7  (‭But as for me, I will look to the Lord; I will wait for the God of my salvation; my God will hear me.) for as long as I can remember.  However, 1 Thessalonians 5:16-17 have become increasingly precious to me as I travel the path the Lord has laid out for me.

I can understand how people with various illnesses might ask "Why me?" of God.  But I, personally, can't question His motives.   His thoughts are higher than my thoughts (Isaiah 55:9) and His plans are always for my ultimate good (Jeremiah 29:11).    It's okay that I don't understand the omniscient, omnipotent, omnipresent God of the universe.   If my human brain could comprehend God's wisdom,  He wouldn't be God.

And if you really think about it, we ALL are severely disabled compared to God.  Humanity is a disability.  In some ways, an otherwise healthy human being is more disabled than someone like me who has a long-term illness because they think they are more capable than they really are - they aren't as aware of their limitations.  I have had to accept that my body is not able to do the things it once could (like run and jump), I can't just push through when I'm tired and accomplish a task by sheer willpower- my body shuts down when I'm fatigued and I HAVE to rely on the strength of the Lord for absolutely everything.   

But so do you.  You take your next breath by the grace of God.  You take it because God GIVES it to you.  It's a gift.  Your next heartbeat comes from Him too.  Without it, you don't take your next breath.   You NEED God for every bodily function.   And I am at an advantage over a healthier person because I am watching my body fail and I am increasingly thankful for the parts of my body that work overtime to compensate.   God does that for me!  Every successful step I take that doesn't end with a hug from the floor I am reminded of God's protection. 

So I rejoice always!  And I pray constantly.   And I feel fantastic even when I don't feel energetic. 

Sunday, November 10, 2024

Power in Weakness


I don't want to give the impression that I don't struggle.  Multiple Sclerosis is no picnic.  I have days when my body feels weighed down by heavy sand bags and I can't seem to keep a coherent thought in my head.  I struggle with prioritizing my day and with meal planning.  And at the end of the day I am often too fatigued to have a conversation with my husband.   I have trouble remembering names of people I meet even 5 minutes after hearing their names for the first time.  I can't control my left ankle so my foot is constantly catching on the floor and I have fallen or nearly fallen countless times.  I could do an entire post all about my struggles with MS.  

But I am too occupied with the Lord to pay any real attention to my physical struggles.   And I have found that my faith truly IS stronger because I have MS.  God's strength is made perfect in my weakness. Because I am so weak due to MS, I am strong- bold for Christ like I wasn't before.   I am confident in who I am because God says I am HIS and I am proud to call Him Father!  

This morning during our worship service a man stood up and spoke and the thing he said that really resonated with me was that "We need to pray out loud with our hearts!"  

So, I DO have my struggles but God has overcome those struggles in my life and I have His protection - through an incurable, often debilitating illness ironically.  

And I have SO MUCH armor on that I am able to withstand these trials in these troubled times.

‭‭1 Thessalonians‬ ‭5:8‬ ‭ESV‬‬
But since we belong to the day, let us be sober, having put on the breastplate of faith and love, and for a helmet the hope of salvation.

Hang in there and lean on Christ who is all sufficient!

Saturday, November 9, 2024

What are you wearing?

My particular "brand" of MS does not experience the typical heat intolerance that is experienced by the majority of MS sufferers.  But the cold shoots right through me and I often struggle to stay warm.  I also happen to have Raynaud's which is another auto-immune thing that affects the circulation in my hands and feet.  I sleep with a heating pad on my feet and an electric blanket.  I carry around hand warmers and I have a heated vest for winter days.  It is important that I wear clothes that keep me warm - especially when I am outside. 

But the most important things I put on are my Spiritual Armor (Ephesians 6:10-18) and Love (Colossians 3:14).

I read from 3 or 4 different sources each morning.   I read the daily devotional from In Touch Ministries,  Our Daily Bread and I am reading through the Bible chronologically this year as well as a daily verse from the YouVersion app.  I use the Olive Tree Bible App to take notes and the YouVersion to find devotionals that speak on differing topics as they come up.

Today, there was a definite theme.  The Lord has been speaking to my heart this morning about the vital importance of loving eachother and serving eachother in love.  And the importance of forgiveness and using our gifts to point eachother to our living, loving Savior.  

This is the passage used in this morning's Our Daily Bread devotional:  ‭‭1 Peter‬ ‭4:7‬-11 ‭ESV‬‬ - The end of all things is at hand; therefore be self-controlled and sober-minded for the sake of your prayers. 
As each has received a gift, use it to serve one another, as good stewards of God’s varied grace: whoever speaks, as one who speaks oracles of God; whoever serves, as one who serves by the strength that God supplies—in order that in everything God may be glorified through Jesus Christ. To him belong glory and dominion forever and ever. Amen.

We are to USE the gifts God has graciously given us to serve one another as vessels of God's wisdom, strength and love.

And the daily YouVersion passage was Colossians 3:12 but I read further:
Colossians‬ ‭3:12‭-‬17‬ ‭ESV‬‬ - Put on then, as God’s chosen ones, holy and beloved, compassionate hearts, kindness, humility, meekness, and patience, bearing with one another and, if one has a complaint against another, forgiving each other; as the Lord has forgiven you, so you also must forgive. And above all these put on love, which binds everything together in perfect harmony. And let the peace of Christ rule in your hearts, to which indeed you were called in one body. And be thankful. Let the word of Christ dwell in you richly, teaching and admonishing one another in all wisdom, singing psalms and hymns and spiritual songs, with thankfulness in your hearts to God.  And whatever you do, in word or deed, do everything in the name of the Lord Jesus, giving thanks to God the Father through him.

This passage stresses that we are not only to SERVE one another but we are to BEAR WITH one another - showing compassion,  meekness, kindness, forgiveness, humility and ABOVE ALL: love.  This is the key, the source of peace.  If we exercise our gifts lovingly and without grumbling, esteeming eachother higher than ourselves (Philippians 2:3), seeking to be at peace with one another, we will be building eachother up and then we won't be able to contain the blessings.   They will spill out of us and we will be able to bless those we encounter throughout the week.   This is how we begin reviving Christians and sparking a fire that will spread throughout the world!  

The Blessings of MS Continue

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