A Blog about the blessings I have experienced after a Multiple Sclerosis diagnosis and joyful living in the light of Jesus Christ, my Savior!
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Monday, March 24, 2025
Strong Willed?
I have been repeatedly been told that I am strong willed and that I don't recognize the limitations placed on me by MS. I am told that I am over-confident in my abilities and don't recognize that there are things I just can't do anymore. I am misunderstood.
But I have difficulty articulating my thoughts on this issue verbally without sounding defensive. If I object to this characterization of me and try to explain why I believe it is incorrect, I am told that I am argumentative and contrary, prideful and unwilling to accept criticism. I don’t have the luxury of taking my time during these “discussions” to collect my thoughts and formulate coherent expressions without sounding like a whiney teen trying to get out of trouble. So I have stopped trying to be understood and am just resigned to be viewed in a way that is inaccurate, in my opinion anyway. 🙂 In short, I would rather be viewed incorrectly as over-confident and strong willed than as contrary, argumentative and unwilling to take criticism.
But for the record, the reason I am viewed as strong willed and over-confident is because I have a can-do attitude and that is something I refuse to give up. It helped me when I was young and healthy because, even if I didn’t know how to do something, I was very resourceful and was always willing and able to put the hard work in to figure out how to get a job done. Now, I am less able to learn how to do new things - especially if they are complicated. But I do not want to be that person who gives up on life and never tries because they are convinced they can’t.
I have MS, yes! And there ARE things I truly CAN’T do anymore - like run, clean the house thoroughly top to bottom in one day, multi-task, etc. But these are not the types of things I am talking about. There are things I can still do but just not as quickly as I used to. I can still cook, for instance, but now I have to start much earlier so I can take my time, working more sequentially than trying to get multiple things done at once. I can still do laundry, but I just need time to fold things and get them put away because I can’t feel my fingers and so I fumble around a little and I can’t walk fast or I could trip and fall. I can still pull weeds and do yard work but my legs need frequent breaks and I get lightheaded easily if I am bending over or looking up too much - I am not efficient but I can physically do the work. And I SHOULD continue to do whatever activities I can now to keep from continuing to get weaker because the day I truly CAN’T do those things will arrive much more quickly if I am not trying now while I CAN. So, when told I can’t go on a hike or out for a walk or a variety of other things, I always say “Yes I can!”
I am a positive person by nature - an eternal optimist. That doesn’t mean that I don’t recognize my limitations or can’t admit when something is beyond my abilities. What it means is that I am always willing to give it a try and that I need people to exercise patience and grace while I work through a task more methodically than they would. And bear with my upbeat music because that really helps me with energy and focus.
I recognize it is frustrating for someone who is high energy, efficient and enjoys juggling multiple things at once to see someone like me slowly chopping vegetables for stir-fry because I am afraid I might cut a finger and not be aware of it until I see blood (because some of my fingers are numb). But that does not mean that I need someone to take over for me. If there is no deadline we are trying to meet, just let me struggle!
Correct me if I am wrong in these attitudes but I truly believe I should not give up on trying to continue to participate in life - even if my ability to do so is awkward or slow. I can laugh about my inefficiency - and I actually really enjoy a good laugh at my own expense. I don’t take myself too seriously but I think that is where I am viewed as over-confident sometimes as well.
What I am trying to do is to make sure the people around me know I can still do things to contribute - that no one needs to feel burned out and like they have to be responsible for everything. And that they can laugh with me about how I got out a butter knife instead of a butcher knife to cut up a watermelon or accidentally spilled blueberries all over the kitchen or how I sang the wrong words to that song.😉
Now, where I AM strong willed, and the Lord is really working with me on this, is in the area of receiving care from my loved ones. I do NOT want to be a person who can’t take care of myself, let alone my family. I recognized a long time before I got MS that I was going to be a terrible patient if I ever needed full time care. I just don’t trust people not to drop me if I need help transferring from a wheelchair to a bed, for example. But I hope and pray that this is a lesson I am able to learn before the Lord forces me to learn it through becoming increasing disabled.
This has been a long and rambling post but I guess what I am trying to say is that I AM confident but I am confident in the LORD - that He will provide me with the strength and abilities necessary to meet each moment and accomplish every necessary task or goal. And I am strong willed in that I will not allow my faith in God’s ability to sustain me to be shaken or questioned. This is what I meant when I said I was misunderstood. Not that I am not confident or strong willed, but that I am not SELF-confident or over-confident in my own abilities.
I was just reading in John 15 this morning: ““I am the vine, you are the branches. He who abides in Me, and I in him, bears much fruit; for without Me you can do nothing.” John 15:5 and I immediately thought of Philippians 4:13 - I can do all things through him who strengthens me. I am very aware that I can’t even take my next breath without Jesus’ help. But conversely, I am confident that Jesus Christ will give me the strength to accomplish anything required of me.
Friday, March 21, 2025
Hard pressed on every side, but not destroyed.
Wednesday, March 19, 2025
The Best Part of Today
The Blessings of MS Continue
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